Preemie surgery

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  • Preemie surgery

    Nicu Moms - 2021 gerachf updated 3 weeks, 1 day ago 2 Members · 2 Posts
  • Nicu Moms - 2021

    michelucky

    Member
    November 6, 2021 at 3:49 am

    I’m sending you love❤️

  • Nicu Moms - 2021

    owlsnarks

    Member
    November 6, 2021 at 3:49 am

    My baby didn’t have a central line placed, but he did have a full cath lab heart surgery/procedure. It was so shocking to me they could operate on a five pound baby and do anesthesia and everything. I know how scary it can be!

  • Nicu Moms - 2021

    NewShock2391

    Member
    November 6, 2021 at 3:49 am

    Thoughts with you at what is a difficult time. I’m envisaging PICC to be what I know as a “long line” which is a catheter to the heart for delivering medicine and nutrition.

    For us that was a day 1 treatment for meds and TPN. Has your baby ever had one in before? Here in the UK, at least in our NICU, they got replaced every 9 days or so for infection control. We have had some doctors struggle to place but in the end they have always managed it without surgery.

    That aside our preemie has been anaesthetised and operated on for his subgaleal shunt (brain). Nothing I can tell you will take your fears away – it is completely natural to be frightened.

    However, you have to remember that many surgeries, even on such little babies, are well practised and almost routine and from what I am told (and from my experience) are always conducted by Consultant Surgeons and not Registrars (not sure what the non-UK equivalents are).

    That extends to the anaesthetists too.

    My first experience with surgery was frightening. There will be more.

    On reflection I only remember two things following it. First, relief that everything went well and our preemie’s condition would improve and second, annoyance that our little one had become a oedematus from the additional fluids and nil-by-mouth in the hours leading up to surgery.

    Within a few hours of surgery our little one was back awake.

    I’d recommend getting your questions down in writing and grilling the surgical and anaesthetic team (who may not be the same team if it is anything like the UK) to put your mind at ease. Only they can really so that.

  • Nicu Moms - 2021

    ParisOfThePrairies

    Member
    November 6, 2021 at 3:49 am

    When my 24 weeker was a few days old, they had *several* failed attempts and they needed to call in a surgeon for a central line.

    I believe they did it bedside because of his age (we weren’t allowed in), but he was already intubated and I honestly don’t know what they did for sedation. We were brand new to this NICU world and were just trying our best to catch up and stay afloat.

    He was weighing like 690g at the time, so even the surgeon struggled. But they got it in and it lasted for the time they needed it to. But, due to all the struggles and his size, it caused a lot of damage. His leg (thigh) and groin was very raw, ended up turning purple, and they thought he could potentially lose it or lose some function to it.

    But it healed. He has a pretty significant scar there, but no major infections or other difficulties. He’s only 1 year (9 months adjusted), so we still don’t know long term how it may have impacted his function, but we definitely didn’t get the worst case scenario.

    Also – we didn’t notice any issues with sedation or anything, but that’s also because he was still a tiny peanut who hadn’t even opened his eyes yet. He’s since had laser surgery (at 6.5 months adjusted) with no issues with general anaesthesia!

    Im not sure if any of that helps, but I feel like I’ve never seen this come up before, and thought it was actually quite similar to our own situation.

    I hope all goes well! Keep us posted if you’d like. I’m here for any questions about it or anything micropreemie!!

  • Nicu Moms - 2021

    rbr0wn

    Member
    November 6, 2021 at 3:49 am

    NNP student and NICU nurse here. It’s not uncommon for us to be unable to place a PICC in a baby. Sometimes preemies just have poor venous access and it’s incredibly difficult to find a vessel that leads straight to the heart, which is what a PICC line is. We have lots of babies who need something called a CVC, otherwise known as a central venous catheter. There’s a type called a Broviac and it is inserted straight through the chest and tunneled into a large vessel and then into the heart. It’s done in surgery under sedation. I’ve never seen any complications from a CVC insertion. They clot less and tend to last much, much longer than a PICC line. Don’t stress about it! Nurses are also able to draw blood off the line, which minimizes pokes the baby has to have. Ultimately, it’s a safe surgery and recovery time is minimal.

  • Nicu Moms - 2021

    gerachf

    Member
    November 6, 2021 at 3:49 am

    I think, as a NICU parent, we must have scavenged through Google for information when we heard of any new medications or procedures from the providers. My 27 weeker is now 30+2, unfortunately after multiple attempts the RN/MD still couldn’t get a PICC into our baby’s vein, looks like our last option is to get a central venous line in via a surgery. Is this procedure relatively safe? would anyone be willing to share any experience of your LO recover from surgery (with general anesthesia)? Thank you!

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