newballcoachGuestSeptember 15, 2021 at 2:45 am
Totally. My son had an ileostomy and we dealt with the constant back and forth. We were always worried about NEC as well but the odds of it reoccurring are incredibly small.
Once our son got bigger they started doing refeeds, where they would pump the contents of the bag through his stoma and he would digest “normally”. Hopefully your hospital does that because it’s a very important step to helping them get to reenastomosis, even if it is gross.